I know it’s been almost four months since I last posted. Let’s just say I've been busy. I am planning Isabella's first birthday party (more details on that later) and was recently promoted. I have been training someone and in have been in training myself.
I started this blog as a way to document everything going on with Isabella and our little family. I also did it as a creative outlet for myself. I was a broadcast journalism major in college but never really did anything with it. Hopefully this gets me to do a little more writing.
Almost a year ago I was about ready to pop. Isabella was a few weeks away from being born. I can honestly say it was a very exciting and scary time in our lives. We were so excited to meet her but very fearful of all the unknowns. How do you care for a new born? What do you do if she cries and you can comfort her? There were so many things we did not know but we were definitely ready for the challenge.
Isabella Nicole was born Monday, April 19th at 8:39pm. She weighed in at 6lb 13.5 oz and measured 20 inches. She was absolutely perfect! I was finally able to meet my little princess.
The following day we were on cloud nine. We could not believe how lucky we were to have such a beautiful little girl. Earlier in the day she was given her hearing test and failed. Like any parent we were concerned and asked to see a pediatrician. When the pediatrician finally came to see her we voiced our concerns about her hearing. My mom had noticed her she had a continuous eyelid flutter. We asked the doctor about it. She examined her and said she was having a seizure. They immediately rushed Isabella to the NICU. We watched as the poked and prodded the poor little thing.
Isabella spent the next four days in the NICU. She had an MRI done which was inconclusive because they did not know if what was seen was something abnormal with her brain or if it was movement, since she had not been sedated. She also had an EEG done to figure out if she was having seizures and put on Phenobarbital (medication to control the seizures). The EEG showed no seizure activity.
We were happy to bring Isabella home. Unfortunately the medication would make her very drowsy (she would about 20 ). Two weeks after she was released from the NICU I took her in for a regular check-up with her pediatrician. Her temperature was very low and the doctor decided she needed to readmit her for hypothermia. She was transferred to a bigger hospital.
While she was in the hospital she had a whole battery of tests done. She had another MRI done. This time they needed to sedate her in order to get the images they needed. The MRI showed she was missing her corpus callosum. This is the portion of the brain that allows for the two hemispheres of the brain to communicate.
We are fortunate that she was diagnosed so early on. The following months would consist of endless visits with many specialists.
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